About Us
We are a non-profit organization committed to improving the quality of life for individuals living with epilepsy and seizure disorders. Our mission is to provide support, education, and advocacy for those affected, helping them feel informed, empowered, and connected.
Through a variety of programs and initiatives, we raise awareness and offer practical assistance, including:
- One on one support
- Support groups
- Transportation services
- Public education
- First aid and CPR
- Mental health programs
About 9 people per 1000 have epilepsy in Ontario.
Founded in 1985
Our Story
Epilepsy South Eastern Ontario began in 1985, when a local family’s journey with epilepsy inspired the creation of a support network for others facing the same challenges. Katherine Manley, whose daughter Jessica was diagnosed that year, recognized how isolating it could be to navigate the condition without clear information or resources. With compassion and determination, she rallied support to ensure no family would have to face epilepsy alone.
What started in the Manley family’s basement quickly grew into a trusted community resource. By 2009, the organization had expanded beyond Kingston to serve communities across Kingston, Frontenac, Lennox & Addington, Leeds & Grenville, Hastings, Tyendinaga, and Prince Edward County. To reflect this broader reach, the name changed to the Epilepsy & Seizure Disorder Resource Centre of Southeastern Ontario, and later in 2015, to Epilepsy South Eastern Ontario.
Today, from our office at 993 Princess Street, Unit 14 – Suite 1430, we continue to build on the vision that started it all — providing education, advocacy, and support for individuals and families impacted by epilepsy and seizure disorders across the region.
Our office serves the following areas:
- Kingston
- Lennox & Addington County
- Leeds & Grenville County
- Hastings & Prince Edward