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Living with epilepsy doesn't have to mean living alone.

Access local programs, peer support groups, and one-on-one guidance tailored to you and your family. Whether newly diagnosed or managing epilepsy for years, help is here.

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Knowledge is power — especially when facing epilepsy.

From webinars to workshops to downloadable guides, we offer expert information to help you understand epilepsy and advocate for yourself or your loved one.

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Preparedness makes a real difference.

Learn seizure first aid, safety planning, and everyday strategies to protect yourself and those you care about. Confidence starts with knowing what to do.

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We provide information, resources, and community referrals to people with epilepsy and their families.

We are a non-profit organization dedicated to improving the quality of life for those living with epilepsy or seizure disorders through support, education, and other resources. It is our mission to support and advocate for community members affected by epilepsy. We provide a variety of services to spread awareness and assist those with epilepsy.

Our services include:

  • One-to-one support
  • Group support
  • Free resources
  • Community displays

Our Programs

Here, you will find a variety of epilepsy-related information, from education concerns to driving rules and regulations.

Our Board

Our Board of Directors is a group of elected volunteers who are responsible for governing the organization.

Our Service Area

Kingston, Frontenac, Lennox and Addington Counties, Leeds and Grenville County, Hastings and Prince Edward County.

Latest News & Updates

We’re Building Our Board

We’re Building Our Board

Epilepsy South Eastern Ontario (ESEO) is currently seeking new Board members in South Eastern Ontario, including Kingston, Frontenac, Hastings and Prince Edward County, Lennox and Addington, Leeds and Grenville. We welcome inquiries from interested community members. ...

Project UPLIFT

Project UPLIFT

Empowering People with Epilepsy to Improve their Mental Health What is Project UPLIFT? Project UPLIFT is a program that teaches the skills for managing and improving stress, mental health, and quality of life. The goal of Project UPLIFT is to empower people with...

Purple Pumpkin Project

Purple Pumpkin Project

The Origin of The Purple Pumpkin Project While on a drive through Connecticut one Sunday morning with his family, founder Ron Lamontagne was brainstorming ideas on how to spread epilepsy awareness. The local pumpkin patch provided the solution. Since kids would soon...

Frequently Asked Questions

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What is epilepsy?

It’s a common brain disease characterized by the tendency to have recurrent seizures, which are sudden bursts of electrical activity in the brain that cause a disturbance in the way brain cells communicate with each other. There are many kinds of seizures, depending on which part and how much of the brain is affected. Currently there is no cure, and for many it is lifelong.

Learn More About Epilepsy

What should I do if someone has a seizure?

Your goal is to protect the person from harm until full awareness returns. Different seizure types require different levels of intervention but generally, you will want to:

  • Protect the person from injury, move any hard, sharp, or hot objects away and loosen any tight neck wear.
  • Do not restrain the person or put anything in their mouth.
  • Check the time so you know when the seizure started.
  • Check for medical or emergency identification.
  • If you know that the person has epilepsy or a seizure disorder continue to time the episode. If the seizure lasts longer than 5 minutes or repeats without full recovery, call 911.
  • If the person does not have epilepsy or a seizure disorder, call 911.
  • After the seizure subsides, roll the individual onto their side and clear vomit from their mouth if necessary.

View Information on First Aid for Seizures

How is epilepsy treated?

Medication is the most common and effective way to treat epilepsy; however, there are also non-drug treatments such as surgery, ketogenic diets, and nerve stimulation. It’s important to remember that everyone is different, and everyone responds differently, so a person with epilepsy should discuss their care with their physician before making any changes to their treatment. 

View More Information on Epilepsy Treatment

Can people die from epilepsy?

Potential causes of death related to epilepsy can be from injuries or accidents during a seizure (such as drowning) or from complications related to status epilepticus. Other epilepsy-related deaths are categorized as SUDEP (Sudden Unexpected Death in Epilepsy) if a person dies suddenly without a cause for death found at autopsy. A death is categorized as SUDEP when someone with epilepsy dies without any detectable reason and without warning. SUDEP can occur during the day but happens more often at night during sleep which makes it difficult to find out what happened.. The strongest risk factor for SUDEP is having frequent generalized tonic-clonic seizures. SUDEP accounts for up to 18% of all deaths in people with epilepsy. 

View Information on SUDEP

What is the difference between epilepsy and seizures?

They’re very closely related, but not quite the same. A seizure is the brief disruption in normal brain activity that interferes with brain function. Anyone can potentially have a seizure and it doesn’t automatically mean that they have epilepsy. Epilepsy is a brain disorder associated with an increased susceptibility to seizures.

Volunteer with us!

Volunteers are an integral part of our community.

By contributing your time and efforts to our agency, you help us achieve our mission and continue providing much-needed support and education services to those in the community affected by epilepsy.

Our Sponsors and Partners